Google
Trusted Resources: News & Events
Latest announcements and gatherings
Sickle cell patients in UK survey, especially those 16 to 20, voice problems with care and pain relief given
In a survey, patients across the U.K. with sickle cell disease — especially adolescents and young adults — voiced discontent with their healthcare experiences, particularly as they relate to emergency care and the promptness of pain relief, a study reports.
The study, “Patient-reported experience measure in sickle cell disease,” was published in the journal Archives of Disease in Childhood.
Sickle cell is among the more common, serious genetic conditions diagnosed in newborns in the U.K., predominantly affecting people of African descent, the researchers note, citing a National Health Service (NHS) report.
Despite its prevalence, understanding and awareness of the condition — which influences patient care — can be poor. Disease symptoms like vaso-occlusive pain crises that strike patients are often treated with opioid-based painkillers that require a prescription, and younger patients requesting such treatment can be regarded with suspicion.
+myBinderRelated Content
-
Doris Duke Charitable Foundation awards grant to Critical Path InstituteIn a continuing effort to spur advance...
-
Patient-reported experience measure in sickle cell diseaseObjectives: To develop patient-reported...
-
Updated Mechanisms Underlying Sickle Cell Disease-Associated PainSickle cell disease (SCD) is one of the ...
-
Our healthcare system abandons adult sickle cell patientsWhen Janoi Burgess was a child, he thoug...
-
‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted asideAmy Mason had toughed it out for hours o...
-
U.S. Government Awards Missouri Researcher $4.3 Million to Study Sickle Cell in Teens, AdultsThe National Institutes of Health (NIH) ...
-
PCORI Board Approves $18 Million for Research on Sickle Cell DiseaseThe Patient-Centered Outcomes Research I...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.